Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
-
Thalassaemia International Federation (TIF) · · Hematology
Efficacy and Safety οf Mitapivat in Adults with Transfusion-Dependent Α-Thalassaemia or Β-Thalassaemia (ENERGIZE-T): A Double-Blind, Randomised, Multicentre, Placebo-Controlled, Phase 3 Trial
Abstract Background: The absence of disease-modifying therapies for patients with α-thalassaemia and oral disease-modifying therapies for patients with β-thalassaemia has been a substantial unmet need in these patients. We assessed the …
-
Thalassaemia International Federation (TIF) · · Hematology
Delayed Recognition and Significant Morbidity in Adults with Non-Transfusion-Dependent Thalassemia
Abstract: Non-transfusion-dependent thalassemia (NTDT) is characterized by variable degrees of anemia, ineffective erythropoiesis, and iron overload, with a heightened risk of age-related complications. However, the clinical profiles of patients who …
-
Thalassaemia International Federation (TIF) · · Hematology
Global Burden of Thalassemia by Socio-Demographic Index, 1990–2023: Trends, Disparities, and Future Implications
Thalassemia imposes a substantial and unequal global health burden, yet its temporal evolution stratified by sociodemographic development remains incompletely characterized using the most recent Global Burden of Disease (GBD) data. …
-
Thalassaemia International Federation (TIF) · · Hematology
Ramathibodi Hospital, Mahidol University, Thailand (copy)
Want to follow it? Tell us
Request a demo and mention PEC Pulse: we will let you know when it opens.