Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
-
European Haemophilia Consortium (EHC) · · Hematology
Bridging the Gap: Executive Summary of the EHC 2026 Round Table on Bleeding Disorders and Cardiovascular Care in Europe
In September 2026, the EHC organised a Round Table at the European Parliament in Brussels, hosted by MEP Aurelijus Veryga. The Executive Summary of the event is now available. The post Bridging the Gap: Executive Summary of the EHC 2026 Round Table on Bleeding Disorders and Cardiovascular Care in Eu...
-
European Haemophilia Consortium (EHC) · · Hematology
European Haemophilia Consortium (EHC) launches Mental Health Toolkit for the bleeding disorders community
On World Mental Health Day 2026, the EHC launches a new resource to support mental health awareness and action across the bleeding disorders community. The post European Haemophilia Consortium (EHC) launches Mental Health Toolkit for the bleeding disorders community appeared first on European Haemop...
-
European Haemophilia Consortium (EHC) · · Hematology
New European Haemophilia Consortium (EHC) guide helps adults with bleeding disorders describe their pain to healthcare teams
To mark World Patient Safety Day 2026, the EHC is releasing a new guide, “I want to talk about my pain today!”, built on a simple principle: accurate pain assessment and patient-clinician communication are fundamental to getting the right care. The post New European Haemophilia Consortium (EHC) guid...
-
European Haemophilia Consortium (EHC) · · Hematology
EHC is recruiting a Public Policy Intern for its Youth Fellowship Programme
The position, open to members of EHC National Member Organisations, is a full-time, paid internship of up to six months, combining work at the EHC office in Brussels and teleworking. The post EHC is recruiting a Public Policy Intern for its Youth Fellowship Programme appeared first on European Haemo...
Want to follow it? Tell us
Request a demo and mention PEC Pulse: we will let you know when it opens.