Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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World Federation of Hemophilia (WFH) · · Hematology
WFH November webinars explore key areas of bleeding disorders care
This November, the World Federation of Hemophilia (WFH) will host four digital webinars which will address important topics for the global inherited bleeding disorders community. From adolescent care and rare bleeding disorders to women’s oral health and chronic synovitis, these sessions will bring...
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World Federation of Hemophilia (WFH) · · Hematology
Genetic technologies for hemophilia video series released
The World Federation of Hemophilia (WFH) is pleased to announce the release of a new four-part educational video series on genetic technologies for hemophilia. Designed for people with bleeding disorders, their families, and healthcare professionals, the series explains complex scientific concepts i...
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Cancer Research UK (Science & Patient Updates) · · Oncology
Autumn Budget 2026: What does it mean for people affected by cancer?
The post Autumn Budget 2026: What does it mean for people affected by cancer? appeared first on Cancer Research UK - Cancer News.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
How MS organisations can shape research
How MS organisations can shape research MS International Federation.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
The future of MS course descriptors
The future of MS course descriptors MS International Federation.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
MSIF 2026 Global Networking Meetings
MSIF 2026 Global Networking Meetings MS International Federation.
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Cancer Research UK (Science & Patient Updates) · · Oncology
Latest winner in our Research is Beautiful competition
Many thanks to all the entrants of the October Research is Beautiful image competition – here is our worthy winner… The post Latest winner in our Research is Beautiful competition appeared first on Cancer Research UK - Cancer News.
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World Federation of Hemophilia (WFH) · · Hematology
World Hemophilia Day 2027: Every voice counts.
April 17, 2027 will be a day to celebrate World Hemophilia Day, and the solidarity of the global inherited bleeding disorders community. This year’s theme of “Every voice counts.” recognizes the successes that have come from the collective efforts of countless individuals and organizations collabora...
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