Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Global Alliance for Patient Access (GAfPA) ·
Germany Limits Access – Patients Pay the Price
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Global Allergy & Airways Patient Platform (GAAPP) ·
GAAPP Board of Directors Elections 2026
Call for Nominations for the Board of Directors for the... The post GAAPP Board of Directors Elections 2026 appeared first on Global Allergy & Airways Patient Platform.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
£1.6 million raised by The May 50K 2026
£1.6 million raised by The May 50K 2026 MS International Federation.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
Strong member endorsement reflects the value of MSIF membership
Strong member endorsement reflects the value of MSIF membership MS International Federation.
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Rare Diseases International (RDI) ·
Read the June 2026 Newsletter from Rare Diseases International
The post Read the June 2026 Newsletter from Rare Diseases International appeared first on Rare Diseases International.
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Global Alliance for Patient Access (GAfPA) ·
A New Option, A Bigger Opportunity: Cholesterol Management’s Place in Cardio-Kidney-Metabolic Strategy
This week the FDA approved a new oral PCSK9 inhibitor, the first in that class available as a once-daily pill rather than an injection, for adults with hypercholesterolemia. It joins a growing set of tools for managing LDL cholesterol, including statins, ezetimibe, injectable PCSK9 inhibitors, and o...
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Global Allergy & Airways Patient Platform (GAAPP) ·
GAAPP Academy – Reflections on Continuity: Keeping the Legacy Alive
In this GAAPP Academy webinar, “Reflections on Continuity: Keeping the... The post GAAPP Academy – Reflections on Continuity: Keeping the Legacy Alive appeared first on Global Allergy & Airways Patient Platform.
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Global Genes (Rare Disease Advocacy) ·
Acting FDA commissioner pledges to prevent political interference in rare disease meeting
Global Genes was honored to be invited by the FDA to participate in a closed roundtable discussion […] The post Acting FDA commissioner pledges to prevent political interference in rare disease meeting appeared first on Global Genes.
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