Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Global Allergy & Airways Patient Platform (GAAPP) ·
World Bronchiectasis Day 2026
Join our World Bronchiectasis Day Marathon! This World Bronchiectasis Day 2026 on 1... The post World Bronchiectasis Day 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Genes (Rare Disease Advocacy) ·
CURE SYNGAP1 announces $111,960 investment in RARE-X partnership to advance ProMMIS patient-reported outcome measure data collection – PR46
CURE SYNGAP1 is proud to announce a strategic investment of $111,960 in RARE-X to accelerate the collection of high-quality […] The post CURE SYNGAP1 announces $111,960 investment in RARE-X partnership to advance ProMMIS patient-reported outcome measure data collection – PR46 appeared first on Globa...
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Global Allergy & Airways Patient Platform (GAAPP) ·
GAAPP Research: June 2026
The post GAAPP Research: June 2026 appeared first on Global Allergy & Airways Patient Platform.
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Rare Diseases International (RDI) ·
Read the May 2026 Newsletter from Rare Diseases International
The post Read the May 2026 Newsletter from Rare Diseases International appeared first on Rare Diseases International.
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Rare Diseases International (RDI) ·
Read the April 2026 Newsletter from Rare Diseases International
The post Read the April 2026 Newsletter from Rare Diseases International appeared first on Rare Diseases International.
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Global Alliance for Patient Access (GAfPA) ·
Cardiovascular-Kidney-Metabolic Policy Forum: Addressing the Disproportionate Impact of CKM Conditions on Women’s Wellness
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World Patients Alliance (WPA) ·
Patients Stand With Nurses Beyond International Nurses Day 2026
The post Patients Stand With Nurses Beyond International Nurses Day 2026 appeared first on World Patients Alliance.
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Global Allergy & Airways Patient Platform (GAAPP) ·
Newsletter: May 2026
The post Newsletter: May 2026 appeared first on Global Allergy & Airways Patient Platform.
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