Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
From Patient Voices to Real-World Impact: EUPATI at PEOF 2026
At this year’s Patient Engagement Open Forum (PEOF) in Sevilla, Spain, EUPATI led and co-organised many sessions exploring what it takes to turn lived experience into meaningful, measurable change. Here’s a condensed look at each. Integrating the Future of Patient Experience Data (PED): From Patient...
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
More About Our Team…Let’s Chat To…
Bojan Cigan, EUPATI’s Partnerships and Operations Coordinator. Let’s get to know Bojan, the next up on our EUPATI Secretariat spotlight series! Originally from Slovenia and now calling Brussels home, Bojan serves as our Partnerships and Operations Coordinator. Bojan quietly keeps the wheels of colla...
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
Building Trust From Day One in Clinical Research: A Co-Created Session at PEOF 2026
What does it take for underserved and underrepresented communities to feel safe enough to join a clinical trial? Building trust from day one in clinical research. That was the focus of a session co-organised by several partners of the IHI-READI project at PEOF 2026. READI is a six-year initiative wo...
-
Health Action International (HAI Europe) ·
Reflections from the Global Health Hub Germany Annual Meeting
Following HAI’s participation in the Global Health Hub Germany Annual Meeting in Berlin, Tim Reed, HAI’s non-executive advisor, reflects on the strengths of cross-border collaboration, the different approaches taken by the Dutch and German hubs, and the challenges facing civil society organisations...
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
More About Our Team…Let’s Chat To…
Vitalii Luchinskii, EUPATI’s IT and Toolbox Coordinator. In this latest edition of showcasing our EUPATI Secretariat team, we sit down virtually with Vitalii Luchinskii and discuss his role and responsibilities as well as his working routine. Vitalii is the person behind the scenes keeping EUPATI’s...
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
EUPATI at the European Parliament: Putting Patients at the Heart of Vaccination
On 25 June EUPATI was proud to participate in the European Parliament event “Prevention that Saves: EU Leadership and National Action on Vaccination”. We were delighted to contribute to Session 1: Turning Policy Ambition into Health Outcomes, moderated by Prof. Walter Ricciardi. Maria Dutarte, our E...
-
EUPATI (European Patients' Academy on Therapeutic Innovation) ·
Co-Creating Patient Involvement in IHI-GREG
On 7 May 2026, EUPATI and Novo Nordisk delivered an in-person workshop on patient involvement during the IHI-GREG General Assembly in Copenhagen. The session brought together consortium partners and members of the IHI-GREG Patient Advisory Group (PAG) to explore how meaningful patient involvement ca...
-
Health Action International (HAI Europe) ·
Half of all clinical trials in Europe do not report results as required by law
A study published this week found that half of clinical trials in Europe did not have results available as required by law. Many pharma companies and universities are breaking a new law requiring the results of clinical trials of medicines to be rapidly made public. European regulators do not seem t...
Want to follow it? Tell us
Request a demo and mention PEC Pulse: we will let you know when it opens.