Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Cancer Research UK (Science & Patient Updates) · · Oncology
ESMO 2026: Personalised melanoma vaccine, new lung cancer treatments and next-generation targeted drugs
Cancer Research UK's experts are on hand to help make sense of the most intriguing stories from Europe's biggest cancer conference. The post ESMO 2026: Personalised melanoma vaccine, new lung cancer treatments and next-generation targeted drugs appeared first on Cancer Research UK - Cancer News.
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World Federation of Hemophilia (WFH) · · Hematology
Collaboration strengthens hemophilia care in Trinidad and Tobago
In Trinidad and Tobago, collaboration between the World Federation of Hemophilia (WFH), local people with bleeding disorders (PWBDs), families, healthcare teams, national organizations, and international partners is helping reshape access to treatment and care for people with inherited bleeding diso...
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International Alliance of Patients' Organizations (IAPO) ·
2026 UHC Day Youth Capacity-Building Workshop
2026 UHC Day Youth Capacity-Building Workshop EventsTuesday, 27 October 2026We are pleased to invite you to the 2026 UHC Day Youth Capacity-Building Workshop taking place online on Tuesday, 27 October 2026, from 10:00–11:30 am EDT / 15:00–16:30 CET. As part of IAPO's activities to mark this years' U...
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National Organization for Rare Disorders (NORD) ·
NORD Opens Applications for Two New Patient Registry Projects
Two New Patient Registries to Be Implemented on NORD’s IAMRARE® Platform with support from the Critical Path Institute. NORWELL, Mass., Oct. 21, 2026 — The National Organization for Rare Disorders … Continue reading "NORD Opens Applications for Two New Patient Registry Projects"
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Cancer Research UK (Science & Patient Updates) · · Oncology
Minding the gap – AI regulators should learn from the pharmaceutical industry
AI leaders are warning of catastrophe, but regulations remain limited. The history of the pharmaceutical industry shows why we shouldn’t wait... The post Minding the gap – AI regulators should learn from the pharmaceutical industry appeared first on Cancer Research UK - Cancer News.
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Rare Diseases International (RDI) ·
Read the September 2026 Newsletter from Rare Diseases International
The post Read the September 2026 Newsletter from Rare Diseases International appeared first on Rare Diseases International.
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World Federation of Hemophilia (WFH) · · Hematology
You can now register for CCS 2027!
New therapies, emerging evidence and evolving approaches are creating new possibilities in bleeding disorders care. Be part of the conversation at the WFH 2027 Comprehensive Care Summit (CCS) in Prague, Czechia, this April 14 to 16, 2027. More information on accommodations and travel will be availab...
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Cancer Research UK (Science & Patient Updates) · · Oncology
Can “maxxing” help prevent cancer?
Healthmaxxing trends are everywhere, but is there any evidence behind them? We get to the facts behind the buzz and highlight the healthy trends that can really make a difference. The post Can “maxxing” help prevent cancer? appeared first on Cancer Research UK - Cancer News.
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