Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
-
Cancer Research UK (Science & Patient Updates) · · Oncology
Cancer waiting times: Latest updates and analysis
Get the latest updates and analysis on NHS cancer waiting times in England, and learn what it means for people affected by cancer The post Cancer waiting times: Latest updates and analysis appeared first on Cancer Research UK - Cancer News.
-
Thalassaemia International Federation (TIF) · · Hematology
TIF Annual General Assembly & Capacity Building Workshop 20–22 November 2026 | Athens, Greece
From 20 to 22 November 2026, the Thalassaemia International Federation (TIF) will convene its Annual General Assembly (AGA) and Capacity Building Workshop for Patients and Associations at the Titania Hotel …
-
World Federation of Hemophilia (WFH) · · Hematology
Live now! GPAS 2026 full program
The WFH is pleased to announce that the full program for the Global Policy and Access Summit (GPAS) 2026 is now live! Join us virtually on October 20 to 21, 2026 to share strategies for sustaining and advancing bleeding disorders care in the fast-changing world, and to promote dialogue and knowledge...
-
Global Allergy & Airways Patient Platform (GAAPP) ·
World Chronic Cough Day 2026
Chronic Cough is a disease, not just a symptom The... The post World Chronic Cough Day 2026 appeared first on Global Allergy & Airways Patient Platform.
-
World Federation of Hemophilia (WFH) · · Hematology
Thank you: Etyang Francis’s inspirational letter
During his childhood, Etyang Francis suffered from frequent, debilitating knee joint bleeds and severe nosebleeds. At the time, his family had no knowledge of hemophilia; like many people in Uganda facing unexplained medical issues, they believed his condition was due to witchcraft. This misconcepti...
-
Cancer Research UK (Science & Patient Updates) · · Oncology
Could clearing ‘immune fog’ stop lung cancer?
Researchers have discovered how an immune cell may help lung cancer develop, which could lead to new ways of preventing the disease. The post Could clearing ‘immune fog’ stop lung cancer? appeared first on Cancer Research UK - Cancer News.
-
National Organization for Rare Disorders (NORD) ·
CNBC’s Becky Quick to Moderate CEO Leadership Dialogue on the Next Decade of Rare Disease at the NORD Breakthrough Summit
BioMarin, Jazz Pharmaceuticals, and Otsuka CEOs to Join NORD CEO to Examine What it Takes to Turn Scientific Advancements into Patient Progress WASHINGTON, D.C. and NORWELL, Mass., October 6, 2026 … Continue reading "CNBC’s Becky Quick to Moderate CEO Leadership Dialogue on the Next Decade of Rare D...
-
Cancer Research UK (Science & Patient Updates) · · Oncology
Circulating DNA pioneer wins early detection Impact Award
Fresh from his Impact Award announced at the Early Detection of Cancer Conference in Edinburgh, we chat to Professor Allen Chan... The post Circulating DNA pioneer wins early detection Impact Award appeared first on Cancer Research UK - Cancer News.
Want to follow it? Tell us
Request a demo and mention PEC Pulse: we will let you know when it opens.