Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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World Federation of Hemophilia (WFH) · · Hematology
19th NTGT workshop marks 30 years of scientific innovation
This November, the World Federation of Hemophilia (WFH) will mark 30 years of scientific innovation with the 19th New Technology and Gene Therapy (NTGT) Workshop in Montreal, Canada. Experts from around the world will come to the city on November 12 to 13, 2026 to explore the latest developments in...
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Cancer Research UK (Science & Patient Updates) · · Oncology
A moment with Mariam: Meeting CRUK’s new Chief Clinician
As she begins her tenure as CRUK’s Chief Clinician, we caught up with Mariam Jamal-Hanjani... The post A moment with Mariam: Meeting CRUK’s new Chief Clinician appeared first on Cancer Research UK - Cancer News.
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Cancer Research UK (Science & Patient Updates) · · Oncology
Cancer Research UK appoints Professor Mariam Jamal-Hanjani as its new chief clinician
The post Cancer Research UK appoints Professor Mariam Jamal-Hanjani as its new chief clinician appeared first on Cancer Research UK - Cancer News.
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Global Allergy & Airways Patient Platform (GAAPP) ·
Newsletter: September 2026
The post Newsletter: September 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Allergy & Airways Patient Platform (GAAPP) ·
Newsletter: August 2026
The post Newsletter: August 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Allergy & Airways Patient Platform (GAAPP) ·
GAAPP Research: September 2026
The post GAAPP Research: September 2026 appeared first on Global Allergy & Airways Patient Platform.
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Thalassaemia International Federation (TIF) · · Hematology
THE US THALASSAEMIA EXPERIENCE | A Landscape Analysis by TIF
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Thalassaemia International Federation (TIF) · · Hematology
THE MENA THALASSAEMIA EXPERIENCE | 30–31 October 2026
IMPORTANT UPDATE: Due to the ongoing situation in the Middle East, and with the safety and well-being of participants, faculty and partners as the highest priority, the Masterclass will now …
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