Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Global Alliance for Patient Access (GAfPA) ·
At the World Health Assembly, PWW Calls for Prioritization of Women’s Wellness
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International Alliance of Patients' Organizations (IAPO) ·
Personalised Cancer Care Alliance Position Paper 2.0 Officially Launched
Personalised Cancer Care Alliance Position Paper 2.0 Officially Launched Press and mediaThursday, 7 May 2026We are pleased to share that the Personalised Cancer Care Alliance (PCCA) Position Paper 2.0 was officially launched at a webinar held on 5 May! The Position Paper 2.0 builds on the PCCA first...
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European Haemophilia Consortium (EHC) · · Hematology
EHC is recruiting a Public Policy Intern for its Youth Fellowship Programme
The position, open to members of EHC National Member Organisations, is a full-time, paid internship of up to six months, combining work at the EHC office in Brussels and teleworking. The post EHC is recruiting a Public Policy Intern for its Youth Fellowship Programme appeared first on European Haemo...
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