Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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EUPATI (European Patients' Academy on Therapeutic Innovation) ·
From Patient Voices to Real-World Impact: EUPATI at PEOF 2026
At this year’s Patient Engagement Open Forum (PEOF) in Sevilla, Spain, EUPATI led and co-organised many sessions exploring what it takes to turn lived experience into meaningful, measurable change. Here’s a condensed look at each. Integrating the Future of Patient Experience Data (PED): From Patient...
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EUPATI (European Patients' Academy on Therapeutic Innovation) ·
More About Our Team…Let’s Chat To…
Bojan Cigan, EUPATI’s Partnerships and Operations Coordinator. Let’s get to know Bojan, the next up on our EUPATI Secretariat spotlight series! Originally from Slovenia and now calling Brussels home, Bojan serves as our Partnerships and Operations Coordinator. Bojan quietly keeps the wheels of colla...
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Multiple Sclerosis International Federation (MSIF) · · Neurology
New leadership for MSIF’s International Medical and Scientific Expert Group
New leadership for MSIF’s International Medical and Scientific Expert Group MS International Federation.
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Multiple Sclerosis International Federation (MSIF) · · Neurology
Earlier diagnosis requires more than new criteria
Earlier diagnosis requires more than new criteria MS International Federation.
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Global Allergy & Airways Patient Platform (GAAPP) ·
World Atopic Eczema Day 2026
“Ask Me Anything” this World Atopic Eczema Day 2026! This World... The post World Atopic Eczema Day 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Allergy & Airways Patient Platform (GAAPP) ·
Newsletter: July 2026
The post Newsletter: July 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Allergy & Airways Patient Platform (GAAPP) ·
Newsletter: June 2026
The post Newsletter: June 2026 appeared first on Global Allergy & Airways Patient Platform.
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Global Allergy & Airways Patient Platform (GAAPP) ·
GAAPP Research: August 2026
The post GAAPP Research: August 2026 appeared first on Global Allergy & Airways Patient Platform.
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