Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Thalassaemia International Federation (TIF) · · Hematology
Global Burden of Thalassemia by Socio-Demographic Index, 1990–2023: Trends, Disparities, and Future Implications
Thalassemia imposes a substantial and unequal global health burden, yet its temporal evolution stratified by sociodemographic development remains incompletely characterized using the most recent Global Burden of Disease (GBD) data. …
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Multiple Sclerosis International Federation (MSIF) · · Neurology
Number of people living with MS across the world surpasses 3 million for the first time
Number of people living with MS across the world surpasses 3 million for the first time MS International Federation.
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Thalassaemia International Federation (TIF) · · Hematology
Ramathibodi Hospital, Mahidol University, Thailand (copy)
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World Heart Federation (WHF News) · · Heart and stroke
Accelerating Action on Air Pollution and Cardiovascular Health in the African Region
This statement was delivered by Prof. Fastone Goma under Agenda Item 18.1 – Progress Report on the Updated Regional Strategy for the Management of Environmental Determinants of Human Health in the African Region – at the Seventy-Sixth session of the WHO Regional Committee for Africa Honourable Chair...
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World Heart Federation (WHF News) · · Heart and stroke
A new definition of heart attack will help improve the diagnosis of women
New global definition recognises different causes of heart attack and introduces clearer, sex-specific diagnostic criteria Published at the ESC Congress 2026 and developed jointly by the World Heart Federation (WHF), the European Society of Cardiology (ESC), the American College of Cardiology (ACC)...
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Multiple Sclerosis International Federation (MSIF) · · Neurology
The May 50K 2026: What participants told us
The May 50K 2026: What participants told us MS International Federation.
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International Alliance of Patients' Organizations (IAPO) ·
AMATA Statement at the 76th WHO Regional Committee for Africa
AMATA Statement at the 76th WHO Regional Committee for Africa Press and mediaTuesday, 1 September 2026Agenda item 11: Regional strategy on regulation of medical products in the African Region, 2026–2035 The members of the African Medicines Agency Treaty Alliance (AMATA) welcome and strongly support...
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International Alliance of Patients' Organizations (IAPO) ·
World Patient Safety Day 2026 Global Webinar
World Patient Safety Day 2026 Global Webinar EventsWednesday, 16 September 2026IAPO and NCD Alliance's Our Views, Our Voices initiative warmly invite you to the World Patient Safety Day 2026 Global Webinar: "Partners in Safe Care: Lived Experience and Collective Action for Safety in Noncommunicable...
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