Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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World Patients Alliance (WPA) ·
Plans on Paper, Progress in Practice: Elevating Patient Voice in National Cancer Control Planning Guest post from Pfizer, in partnership with with the WPA.
The post Plans on Paper, Progress in Practice: Elevating Patient Voice in National Cancer Control Planning Guest post from Pfizer, in partnership with with the WPA. appeared first on World Patients Alliance.
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National Organization for Rare Disorders (NORD) ·
NORD Awards Seed Grants to Advance Breakthroughs in Rare Disease Research
Over $145,000 in Funding Supports Innovative Studies Targeting Four Critically Underserved Conditions Quincy, Mass., Oct. 1, 2026 —The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more … Continue reading "NORD Awards Seed Grants to Advance Breakthroughs in...
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World Patients Alliance (WPA) ·
Supporting nursing workforce: A patient care priority
The post Supporting nursing workforce: A patient care priority appeared first on World Patients Alliance.
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World Heart Federation (WHF News) · · Heart and stroke
World Heart Day 2026: Confronting Africa’s Cardiovascular Challenges
This year, Abuja, Nigeria served as the epicenter of World Heart Day, and perhaps nowhere could the message be more consequential, where I joined hands with VP- Prof. Amam Mbakwem. The World Heart Federation had declared 2026 the Year of Neglected Cardiovascular Diseases: rheumatic heart disease, co...
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National Organization for Rare Disorders (NORD) ·
Top U.S. Health Officials to Address Rare Disease Leaders at 2026 NORD Breakthrough Summit in Washington, D.C.
Acting FDA Commissioner Kyle Diamantas, NIH Director Jay Bhattacharya, and Director of National Health Communications for the Office of the Surgeon General Stephanie E. Haridopolos to Address 900+ Attendees at … Continue reading "Top U.S. Health Officials to Address Rare Disease Leaders at 2026 NORD...
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Health Action International (HAI Europe) ·
Navigating Health Misinformation in a Digital Age
Earlier this year, we joined partners in launching the Engaging Citizens in Honest Opinion (ECHO) project. This timely initiative addresses misinformation and disinformation in the European Union across a wide range of sectors, including health, education and the media. Within ECHO, HAI focuses on t...
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World Federation of Hemophilia (WFH) · · Hematology
Vincent from Uganda shares heartwarming story
In 2017, Vincent Komakech went to Lacor Hospital in Gulu with a severely swollen and painful knee. There, Agnes Kisakye, Executive Secretary of the Haemophilia Foundation of Uganda, realized that his clinical presentation was highly indicative of a bleeding disorder. She flagged the case to the phys...
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Global Alliance for Patient Access (GAfPA) ·
Calling for European Action on Blood Health
Blood is one of the body’s most vital organs, yet it remains one of the most overlooked in health policy. Through its Blood Health Initiative, the Global Alliance for Patient Access has long worked to change that. On World Patient Safety Day, GAfPA joined a broad coalition of patient organizations,...
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