Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Cancer Research UK (Science & Patient Updates) · · Oncology
Cancer waiting times: Latest updates and analysis
Get the latest updates and analysis on NHS cancer waiting times in England, and learn what it means for people affected by cancer The post Cancer waiting times: Latest updates and analysis appeared first on Cancer Research UK - Cancer News.
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Thalassaemia International Federation (TIF) · · Hematology
TIF Annual General Assembly & Capacity Building Workshop 20–22 November 2026 | Athens, Greece
From 20 to 22 November 2026, the Thalassaemia International Federation (TIF) will convene its Annual General Assembly (AGA) and Capacity Building Workshop for Patients and Associations at the Titania Hotel …
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European Haemophilia Consortium (EHC) · · Hematology
European Haemophilia Consortium (EHC) launches Mental Health Toolkit for the bleeding disorders community
On World Mental Health Day 2026, the EHC launches a new resource to support mental health awareness and action across the bleeding disorders community. The post European Haemophilia Consortium (EHC) launches Mental Health Toolkit for the bleeding disorders community appeared first on European Haemop...
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World Federation of Hemophilia (WFH) · · Hematology
Live now! GPAS 2026 full program
The WFH is pleased to announce that the full program for the Global Policy and Access Summit (GPAS) 2026 is now live! Join us virtually on October 20 to 21, 2026 to share strategies for sustaining and advancing bleeding disorders care in the fast-changing world, and to promote dialogue and knowledge...
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EURORDIS – Rare Diseases Europe ·
Real4Reg Final Symposium
The post Real4Reg Final Symposium appeared first on EURORDIS-Rare Diseases Europe.
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EURORDIS – Rare Diseases Europe ·
X Jornada Nacional de Pacientes y Familiares de Enfermedades Autoinflamatorias
The post X Jornada Nacional de Pacientes y Familiares de Enfermedades Autoinflamatorias appeared first on EURORDIS-Rare Diseases Europe.
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Global Allergy & Airways Patient Platform (GAAPP) ·
World Chronic Cough Day 2026
Chronic Cough is a disease, not just a symptom The... The post World Chronic Cough Day 2026 appeared first on Global Allergy & Airways Patient Platform.
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EURORDIS – Rare Diseases Europe ·
La Nit de la Visió
The post La Nit de la Visió appeared first on EURORDIS-Rare Diseases Europe.
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