Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
-
National Organization for Rare Disorders (NORD) ·
NORD Applauds FDA’s Initiative to Advance a New Regulatory Framework for Rare Diseases
Statement from Pam Gavin, President and Chief Executive Officer NORWELL, Mass., October 14, 2026 — The National Organization for Rare Disorders (NORD®) applauds the U.S. Food and Drug Administration (FDA) … Continue reading "NORD Applauds FDA’s Initiative to Advance a New Regulatory Framework for Ra...
-
Cancer Research UK (Science & Patient Updates) · · Oncology
Understanding the architecture of pancreatic cancer risk
Núria Malats explores how molecular epidemiology could help us understand the exposome and identify opportunities for prevention and earlier detection of pancreatic cancer The post Understanding the architecture of pancreatic cancer risk appeared first on Cancer Research UK - Cancer News.
-
Health Action International (HAI Europe) ·
Help us Stand up for the Right to Health
For 45 years, Health Action International (HAI) has been at the forefront of the global health equity movement. Our programmes have a positive impact on the lives of people in 36 countries across four continents, and our impact extends even further through our network of partner organisations across...
-
World Heart Federation (WHF News) · · Heart and stroke
WHF Board Elections 2026 Results Announced
We are thrilled to announce the results of the WHF Board Elections for the term 2027-28. Join us in welcoming the newly-elected members: The elected Board Members will take office in January 2027. We extend our thanks to all the candidates who participated and look forward to collaborating with the...
-
Global Alliance for Patient Access (GAfPA) ·
If Remission is More Than a Number, What is it To You?
-
Global Alliance for Patient Access (GAfPA) ·
Remission is More Than a Number: Recognizing World Arthritis Day
-
Thalassaemia International Federation (TIF) · · Hematology
CONGENITAL DYSERYTHROPOIETIC ANAEMIA | New Study Highlights Endocrine Complications
Researchers reviewed the records of 12 patients aged 6–49 years. Nine had endocrine abnormalities, including low bone mineral density, diabetes, subclinical hypothyroidism, and elevated prolactin levels. Ten of the 12 …
-
EURORDIS – Rare Diseases Europe ·
Koolen-De Vries Syndrome Foundation Scientific and Patient Advocacy Summit
The post Koolen-De Vries Syndrome Foundation Scientific and Patient Advocacy Summit appeared first on EURORDIS-Rare Diseases Europe.
Want to follow it? Tell us
Request a demo and mention PEC Pulse: we will let you know when it opens.