Public sources only
Every item links back to the organization that published it.
PEC Pulse
Follow what patient organizations are announcing
PEC Pulse is planned as a news stream that gathers public announcements from patient organizations, always with a link back to the original source.
Coming soon
These capabilities are planned. They are not available yet.
Short digests in plain language
Items summarized in Arabic, English and French.
Information, not medical advice
Pulse reports what organizations announce. It never gives medical advice.
Announcements from patient organizations
Because we care for your health, we gather for you the patient support news of the most credible societies.
Information only, not medical advice. Each announcement belongs to the organization that published it: follow the link to read it at its source.
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Cancer Research UK (Science & Patient Updates) · · Oncology
Minding the gap – AI regulators should learn from the pharmaceutical industry
AI leaders are warning of catastrophe, but regulations remain limited. The history of the pharmaceutical industry shows why we shouldn’t wait... The post Minding the gap – AI regulators should learn from the pharmaceutical industry appeared first on Cancer Research UK - Cancer News.
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Rare Diseases International (RDI) ·
Read the September 2026 Newsletter from Rare Diseases International
The post Read the September 2026 Newsletter from Rare Diseases International appeared first on Rare Diseases International.
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World Federation of Hemophilia (WFH) · · Hematology
You can now register for CCS 2027!
New therapies, emerging evidence and evolving approaches are creating new possibilities in bleeding disorders care. Be part of the conversation at the WFH 2027 Comprehensive Care Summit (CCS) in Prague, Czechia, this April 14 to 16, 2027. More information on accommodations and travel will be availab...
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EURORDIS – Rare Diseases Europe ·
Expert Dialogue on Cross-Border Healthcare
On 4 November, the European Parliament Intergroup on Cancer and Rare Diseases and Giorgos Georgiou MEP, will convene an expert dialogue on how Europe’s cross-border healthcare framework can better meet the needs of people living with cancer and rare diseases. EURORDIS – Rare Diseases Europe, the Eur...
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Cancer Research UK (Science & Patient Updates) · · Oncology
Can “maxxing” help prevent cancer?
Healthmaxxing trends are everywhere, but is there any evidence behind them? We get to the facts behind the buzz and highlight the healthy trends that can really make a difference. The post Can “maxxing” help prevent cancer? appeared first on Cancer Research UK - Cancer News.
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International Alliance of Patients' Organizations (IAPO) ·
IAPO at 73rd Session of the WHO Regional Committee for the Eastern Mediterranean
IAPO at 73rd Session of the WHO Regional Committee for the Eastern Mediterranean Press and mediaThursday, 15 October 2026The 73rd Session of the WHO Regional Committee for the Eastern Mediterranean took place in Cairo from 13-15 October 2026, and during this event IAPO delivered a statement on Agend...
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Multiple Sclerosis International Federation (MSIF) · · Neurology
New World MS Day Theme
New World MS Day Theme MS International Federation.
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EURORDIS – Rare Diseases Europe ·
Europe’s rare disease community sets out Blueprint for coordinated EU action
Our community’s proposals for the structure, priorities and delivery of a future EU Action Plan on Rare Diseases The post Europe’s rare disease community sets out Blueprint for coordinated EU action appeared first on EURORDIS-Rare Diseases Europe.
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